Exploring d/Deaf community perspectives regarding inclusive/accessible healthcare

Abstract

Background: d/Deaf [1]patients face substantial barriers obtaining healthcare, including communication challenges, cultural differences, and unique psychosocial needs. Healthcare providers are generally undereducated on how to best care for this patient population. This project aims to identify healthcare disparities and areas for improvement in healthcare provider education from the d/Deaf-patient perspective. Methods: A 40-question survey was distributed to d/Deaf groups across the United States. Nine focused interviews were conducted with d/Deaf patients. Results: 62 d/Deaf individuals responded to the survey. Due to communication difficulties with healthcare providers, 33% did not access healthcare when needed, 52% had medical questions go unanswered, and nearly 40% did not understand their health. Focused interviews found that d/Deaf patients continue to face healthcare barriers due to communication difficulties, poor awareness of d/Deaf needs, and accessibility concerns. Survey and focused interview participants agreed improved healthcare provider education and awareness would improve their care. Discussion: Data suggest that multifactorial healthcare disparities continue to affect the d/Deaf population and d/Deaf patients believe improved education of healthcare providers is paramount to improve healthcare. Specific curricular areas to improve upon include: communication, cultural/psychosocial issues, and improved awareness of the d/Deaf community. Conclusions: The d/Deaf community faces substantial barriers to accessible healthcare that can be improved by improved healthcare provider curriculum and awareness. Keywords: Deaf, healthcare disparities, curriculum, health literacy, physician training.