Exploring challenges affecting resilience in carers of stroke survivors: a qualitative descriptive study

Abstract

Purpose To develop an intervention to build resilience in carers of stroke survivors this study aimed to understand these carers’ (1) Challenges that adversely affect their resilience, and (2) suggestions for a relevant intervention to build resilience. Methods Individual semi-structured interviews were used. Participants included carers of stroke survivors (stroke duration > six months). Transcripts were analysed using the General Inductive Approach. This study followed guidelines of Consolidated criteria for Reporting Qualitative research (COREQ). Results Four themes were identified that affected resilience: (1) carer psychosocial outcomes, (2) stroke’s sudden and unexpected impact, (3) financial stressors, and (4) carer exclusion in care planning. Carers suggested an intervention comprising information sharing and training in coping skills, positive communication, problem-solving, and connection with “people who have gone through this” to improve resilience. Most supported a group, monthly delivery of the intervention. Conclusion These findings provide direction for a suitable intervention. Further, they suggest that stroke rehabilitation could be improved by adopting a family-centered model of care so that carers can be included as active partners in care process. Protecting carers from the negative impact of caring role on their resilience may sustain their ability to provide long-term care for the stroke survivor. IMPLICATIONS FOR REHABILITATION The provision of informal care to stroke survivors can be associated with significant emotional consequences, withdrawal from social activities, and poor quality of life for the carers. The abruptness of stroke presentation along with its long-term nature can negatively affect the resilience of informal carers. Exploration of challenges affecting carer resilience is important to develop interventions to build resilience in carers of stroke survivors. Integrating interventions focusing on carers’ resilience as part of the stroke rehabilitation process is imperative to ensure well-being of carers and sustainability of the care provided to the stroke survivor.