Exploring caregiver and participant experiences of the Program for the Education and Enrichment of Relational Skills (PEERS®) for youth with acquired brain injury and cerebral palsy

Abstract

Purpose This study explored the experience of adolescents with brain injuries and their caregivers who participated in the Program for the Education and Enrichment of Relational Skills (PEERS®) in Australia. Materials and methods Twenty-seven adolescents and 31 caregivers, who completed the PEERS® intervention as part of an RCT, contributed to focus groups following the 14-week program. Semi-structed interviews guided focus groups. An interpretive description methodology was used to understand participants’ experiences in the program and suggestions for improvements. Results Thematic analysis led to the development of five themes. “Challenging families and meeting expectations” explored the challenge and worth of participating. “Learnt new skills” highlighted skills and strategies gained and methods used to achieve these. “Connecting, belonging and understanding that’s our normal” represented the value placed on the group experience. “Confidence in knowing and doing” reflected the changes in everyday social experiences and “Where to from here?” provided many suggestions for adaptation to improve practice. Conclusion After taking part in the PEERS® social skills group intervention, most adolescents with brain injury and their caregivers perceived improvement in their social participation and had suggestions for improving the group experience. Some adolescents didn’t enjoy the program. IMPLICATIONS FOR REHABILITATION Offering adolescents with brain injury and their caregivers the opportunity to participate in a group social skills intervention is an important part of paediatric rehabilitation. Participants of group social skills interventions are likely to perceive improvements in their everyday social functioning following completion. Considering strategies to enhance engagement in the group is expected to be important for outcomes. Participants of group social skills programs may need additional support and adjustments to balance the demands of the intervention with other everyday family and school tasks and requirements.