Exploration of challenges faced by caregivers of children with autism spectrum disorder

Abstract

Caregivers of children with Autism spectrum disorder (ASD) go through immense stress and challenges in their day to day lives. ASD is a complex neurodevelopmental disorder that causes difficulties in communication, social interaction and repetitive behavior also known as the triad of impairment. The objective of this study is to explore the challenges faced by caregivers of children with Autism Spectrum Disorder in selected setting, Chennai, India. Participants were selected using Non Probability Purposive Sampling technique from the selected special schools.10 parents took part in Focus Group Discussion (FGD) lasting for 1–1.5 hours. FGD was Audio taped and transcribed into verbatim. The themes identified were;diagnosed with Autism spectrum disorder, accepting the fact, expressing thoughts and feelings, support from significant others, impact of autism on family, needs of sibling's, physical strain, personal time, expenses, others reaction. Caregivers of children with ASD face challenges in various dimensions in their day to day life. But these challenges can be effectively managed with adequate support and guidance. Therefore it's important for health professionals to know the challenges faced by caregivers and provide them with the needed assistance.