Abstract

This is a study with the objective to know the experiences of the family caregiver of a person with intestinal ostomy due to colorectal cancer. A qualitative research, grounded on the humanization referential, made in 2013, through serialized semi-structured interviews and inductive analysis. It was approved by the Ethics and Research Committee under legal opinion no. 237,771. Seven family caregivers participated in this study in a county of southern Minas Gerais state, Brazil. Three categories emerged from the data: Relation with the disease and its treatments; Impact facing treatment and rehabilitation and Nets of support. The representation of the disease associated to finitude is reaffirmed. In order to lessen anguish and suffering, the family caregivers search support, mainly in spirituality. The impact resulting from the illness and the rehabilitation process imposes a new order to the caregivers, with personal and social renouncing, which provides a closer and more dedicated relation with the patient.

Highlights

  • The Colorectal Cancer (CC) is one of the malign neoplasias that most attack the Brazilian population, comprising colon and rectum tumors

  • Despite the advancement of the coloproctology related to the prevention and early diagnosis of colorectal cancer, the Brazilian population still deals with difficulties due to the precarious socioeconomic conditions, to the lack of knowledge on this type of cancer, to the delay or to the limitations of access to the health system, as well as to the diagnosis resources and to the existing prejudice against the methods of diagnosis investigation such as the rectal touch(3)

  • The inefficiency of the system, of reference and counterreference corroborates, as well as the biomedical unaccountability in which the truths scientifically produced feed the trend to the conversion of the patient and of the cure into elimination or control of diseases and risks(10). This reality which is presented in the daily activities of the practices in health led us to restlessness which brought us the following question: Which are the experiences of a family caregiver of a person with intestinal ostomy caused by colorectal cancer? In order to provide answer to our wishes, we propose to know the experiences of the family caregiver of a person with intestinal ostomy due to colorectal cancer

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Summary

Introduction

The Colorectal Cancer (CC) is one of the malign neoplasias that most attack the Brazilian population, comprising colon and rectum tumors. The inefficiency of the system, of reference and counterreference corroborates, as well as the biomedical unaccountability in which the truths scientifically produced feed the trend to the conversion of the patient and of the cure into elimination or control of diseases and risks(10) This reality which is presented in the daily activities of the practices in health led us to restlessness which brought us the following question: Which are the experiences of a family caregiver of a person with intestinal ostomy caused by colorectal cancer? The nurse must have the perspicacity to detect such situations and choose members with potentiality for the development of new abilities, able to provide support for self care and to administrate suffering

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