Abstract
Introduction:Patients with stroke are dependent on their family to relieve their physical and emotional needs after discharge form the hospital. The family plays an important role in caring for them, which is a stressful task for the caregivers. This study aimed at investigating the experiences of caregivers of patients with stroke.Method: This is qualitative study (descriptive phenomenology), in which the participants included seven caregivers of stroke patients. Data were collected through semi-structured interviews. Data analysis was performed based on Colaizzi.Result: The results in the study were summarized in three main categories: anxiety (tension and stress, concern about economic future), care consequences (fatigue, reduced family interactions), and neglected needs (psychological needs educational needs)Conclusion: According to the purpose of the study and its implications, it is concluded that nurses and physicians should pay more attention to the needs and concerns of patients and their caregivers and try to resolve them with regard to the consequences of the disease.
Highlights
Patients with stroke depend on their families to relieve their physical and emotional needs after discharge from the hospital
Nurses and physicians should pay more attention to the needs and concerns of patients and their caregivers and try to resolve them concerning the consequences of the disease
The present research was conducted to describe the experiences of caregivers of patients during the care period
Summary
Patients with stroke depend on their families to relieve their physical and emotional needs after discharge from the hospital. The family plays an essential role in caring for them, which is stressful for the caregivers. The study was aimed to investigate the experiences of caregivers of stroke's patients. The Basic Health Research study estimated that 15 million people suffer from stroke every year, of which 5.5 million people die, and 5 million people live with permanent disabilities (The Republic of Indonesia Ministry of Health, 2018). Evidence indicates a higher incidence of stroke in Indonesia than in Asia countries. A stroke occurs at a younger age in Indonesia than in other countries (The Republic of Indonesia Ministry of Health, 2018). The mortality rate remained constant at 32%
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