Abstract

Cancer is a global public health challenge and how patients in countries with poor healthcare infrastructure experience cancer treatment is largely unknown. The objective of this study was to describe adult Ugandan cancer patients' experiences of undergoing chemotherapy treatment. Using a qualitative descriptive design, seven in-patients with varying cancer diagnoses at the Uganda Cancer Institute were interviewed about their experiences of undergoing chemotherapy treatment; the interviews were transcribed and analysed thematically. The analysis resulted in nine subthemes, which were categorized under three main themes: 'experiences related to the body', with the subthemes dry and sensitive skin, changes in eating and bowel habits, fever and feelings of abnormal body sensation; 'thoughts and feelings', with four subthemes reflecting the psychosocial impact of chemotherapy; and 'actively dealing with discomfort', with three subthemes describing how patients dealt with side effects, such as by sticking to a diet. Receiving chemotherapy treatment is difficult, and the side effects negatively influenced patients' bodies and moods. Dealing actively with discomfort and accepting negative impacts in hope of a cure helped the participants manage the acute complications related to the treatment. We recommend the development of interventions to ease discomfort due to chemotherapy.

Highlights

  • It is well-known that patients who are diagnosed with and treated for cancer may experience difficult emotional responses, in addition to physical discomfort

  • The thematic analysis of the interviews resulted in three themes: ‘experiences related to the body’, ‘thoughts and feelings’ and ‘dealing with discomfort’

  • The negative experiences described in the theme ‘experiences related to the body’ reflect typical side effects of chemotherapy, such as fatigue, diarrhoea and loss of appetite, as well as the inability to perform daily activities during the initial days of treatment, all of which are known to compromise patients’ quality of life[10,11]

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Summary

Introduction

It is well-known that patients who are diagnosed with and treated for cancer may experience difficult emotional responses, in addition to physical discomfort. We want contribute to the development of a body of knowledge in cancer healthcare delivery research by exploring patients’ experiences of undergoing treatment in a low-income country, Uganda, which is situated in East Africa. Purpose: The objective of this study was to describe adult Ugandan cancer patients’ experiences of undergoing chemotherapy treatment. Methodology: Using a qualitative descriptive design, seven in-patients with varying cancer diagnoses at the Uganda Cancer Institute were interviewed about their experiences of undergoing chemotherapy treatment; the interviews were transcribed and analysed thematically. Experiences of patients undergoing chemotherapy - a qualitative study of adults attending Uganda Cancer Institute.

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