Abstract
Hepatocellular carcinoma (HCC) is the most common primary liver cancer and the third leading cause of cancer-related death worldwide due to its generally poor prognosis. Caregiver burden for liver cancer cases is higher than with other cancer and needs especial attention. To explore the experiences of families of patients with newly diagnosed advanced terminal stage hepatocellular cancer by interview. Nine participants were recruited in this study. Content analysis of the interviews revealed four themes: blaming oneself, disrupting the pace of life, searching all possible regimens, and not letting go. This study provides new insight into the needs and support of family members especially when they are facing loved ones with newly diagnosed advanced terminal stage HCC. These results will inform future supportive care service development and intervention research aimed at providing assistance in reducing unmet supportive care needs and psychological distress of these family members.
Highlights
Hepatocellular carcinoma (HCC) is the most common primary liver cancer and the third leading cause of cancerrelated death worldwide due to poor prognosis (Parkin et al, 2001)
These results will inform future supportive care service development and intervention research aimed at providing assistance in reducing unmet supportive care needs and psychological distress of these family members
Purposive sampling was used based on the following criteria: (1) more than 18 years old; family of newly diagnosed advanced terminal stage HCC patient; (3) ability to communicate clearly in Mandarin or Taiwanese; (4) no learning, hearing, or communication difficulties; (5) willing to participate in this study
Summary
Hepatocellular carcinoma (HCC) is the most common primary liver cancer and the third leading cause of cancerrelated death worldwide due to poor prognosis (Parkin et al, 2001). Hepatocellular carcinoma (HCC) is the most common primary liver cancer and the third leading cause of cancer-related death worldwide due to its generally poor prognosis. Conclusions: This study provides new insight into the needs and support of family members especially when they are facing loved ones with newly diagnosed advanced terminal stage HCC. These results will inform future supportive care service development and intervention research aimed at providing assistance in reducing unmet supportive care needs and psychological distress of these family members
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