Experiences of cancer patients in a patient navigation program

Abstract

Background: A patient navigation program is a model of care which entails trained personnel to provide individualized and assistive care to adult oncology patients to help them overcome barriers. Patient navigation is a new model of care in many institutions, and as such the experiences of patients in the patient navigation program remains inconclusive. Objective: The review seeks to understand the experiences of adult patients in patient navigation programs and how patient navigators (PN) impact the challenges patients encountered in the cancer care continuum. Methods: A three-step search strategy was used. Each paper was assessed independently by two reviewers for methodological quality using the Joanna Briggs Institute Qualitative Assessment and Review Instrument (QARI). Data extraction and synthesis was conducted using standardized data extraction and synthesis tools from JBI-QARI. Common findings found among the studies were categorized and developed into themes. Results: Three papers were included in the review. The three synthesized findings were: (1) Emotional empowerment; (2) Knowledge empowerment and (3) Bridging the gaps. Discussion: PN have need to be present with patients at key phases of the cancer care continuum and assure patients of their accessibility; PN need to explore and manage the needs and expectations of patients so that healthcare team and patient have the same understanding for treatment goals and plans and PN need to ensure practical assistance is provided for patients to ensure continuity of care even at completion of treatment regimen. Conclusion: The presence of a PN provides strong support to the patients in the midst of the disruption from cancer diagnosis and treatment. The emotional isolation they experienced lessened with the assurance that there is always a consistent and constant contact point they can fall back on. The logistic and practical help given by the navigators allow patients to take time to process information and make sense of what is happening.