Abstract

Caregivers for family or friends who are elderly people or have a disability provide critical supports, with a range of positive and negative consequences associated with their role. This research explores the positive and negative aspects of care-giving, including the experience of abuse within the caring relationship, through an anonymous online survey of the mental health, well-being and caring experience of Australian family carers (N=305). The voluntary participants were recruited through local and national carer associations. Over 40% of respondents reported having experienced abuse by the person they cared for, with the most common form of abuse being verbal abuse (35% of the respondents reporting abuse) and physical abuse (14%). The experience of abuse was related to poorer mental health as measured by the DASS-21 and a lower reported quality of life. Financial stress, lack of support and the negative impacts of care-giving were also significantly associated with mental health and well-being outcomes. The current research is among the first to directly assess the experience of abuse within a broad sample of caregivers, identifying this as a significant issue for caregivers. The findings have clear implications for programs and policies that protect the rights, safety and well-being of caregivers.

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