Experience of parents in wheelchairs with children aged 6 to 12

Abstract

Objectives: Despite the growing number of individuals with motor disabilities who decide to become parents, their parenting role has received little attention in society, research or rehabilitation. The aim of this study was to document the various dimensions of the experience of parents in wheelchairs with children aged 6 to 12. More specifically, the objectives were to: 1) identify the environmental and personal obstacles encountered, 2) document the personal strategies developed, and 3) document the types of formal and informal support used. A conceptual model was then developed. Method: Interviews were conducted with six fathers and six mothers in wheelchairs, followed by a thematic analysis of the content using procedures that met rigorous qualitative research criteria. Results: In performing their parenting role in the three dimensions, the parents encountered two types of obstacles, developed seven types of personal strategies and used four types of informal and formal support. Discussion and conclusion: The diversity of personal strategies is evidence of the parents' desire to develop alternative ways to overcome obstacles. The main reason for seeking support was accessibility limitations. Social prejudices against parents in wheelchairs still exist. Clinical, political and social recommendations are suggested. The initial conceptual model was improved and discussed.