Experience of Identity Change in People Who Reported a Diagnosis of Multiple Sclerosis

Abstract

A diagnosis of multiple sclerosis (MS) can lead to changes to a person's sense of self. The aim of this study was to investigate the subjective experience of identity change and subsequent adjustment to MS. Semistructured interviews were conducted with 16 people who reported having MS. Interviews were analyzed using thematic analysis. In the early stages of disease progression, participants wanted to compartmentalize the disease. Over time, through reflected self-appraisals, brought about by increasing symptoms and changed relationships with others, the disease became a part of participants' self-identity. For people with MS, incorporating and accepting the disease as part of their self-identity can have positive implications for seeking and receiving support.