Abstract

ABSTRACT The study aims to examine the effects of the COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey. The research was conducted with 178 rare disease patients. The sociodemographic questionnaire, The Fear of COVID-19 scale, General Health Survey-12, and the Multidimensional Scale of Perceived Social Support were used. The Fear of COVID-19 Scale average score is 20.20 ± 6.11, General Health Survey-12 average score is 5.82 ± 1.77, and the Multidimensional Scale of Perceived Social Support average score is 52.84 ± 14.23. There is a positive correlation between ages and scores on The Fear of COVID-19 Scale (r = .221, p˂.001). There is a negative correlation between the participant’s scores on the Multidimensional Perceived Social Support Scale and the General Health Survey-12 (r = -,265, p˂.001). It is suggested to develop social service delivery systems to support people with rare diseases.]

Full Text
Paper version not known

Talk to us

Join us for a 30 min session where you can share your feedback and ask us any queries you have

Schedule a call

Disclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.