Abstract
Many young liver patients are not experiencing coherent transitional care to adult services, which has a negative impact on their long-term health. To involve service users in identifying the strengths, limitations and potential methods of improving a hospital's liver transition service, 17 young people and parents participated in questionnaires and interviews exploring the strengths and limitations of the current transition service and then suggested areas for improvement. Data from the questionnaires were collated and presented in Likert scales to identify trends. Interview transcripts were analysed using thematic analysis. Overall, families were satisfied with the current service. Suggested areas for improvement included a guided tour of the adult hospital prior to transfer, increasing the confidence of young people to attend consultations independently, presence of the paediatric consultant at the adult transition clinic and use of a transition website. Valuable insights were gained and the recommended services improvements were made.
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