Abstract
PURPOSE: As the life expectancy for children with cystic fibrosis (CF) has steadily increased, so has the need to transition the care from pediatric to adult specialists. The Cystic Fibrosis Foundation (CFF) has mandated that CF centers provide age-appropriate CF care to maintain accreditation, with the goal that patients be transitioned by 21 years of age. In this study, we evaluated the experiences and opinions of patients in our adult CF center who went through a formal transition versus those who did not, in attempt to evaluate the overall process and to identify means for improvement.
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