Abstract
It has been estimated that there are 36,000 women living with secondary breast cancer in the UK. Many feel isolated and unsupported, their information needs unmet and unaware of available support services such as palliative care or support groups that could help to improve their quality of life.To try to address these needs, a monthly support day was established in 2014 by the national UK breast cancer charity Breast Cancer Haven (BCH) at their Yorkshire centre. The support day provides an opportunity for personal introductions and discussion with other people with secondary breast cancer, to obtain information about breast cancer-related topics of their choice, to eat a healthy lunch and to experience a visualisation/relaxation session. To evaluate how helpful this support day was to its participants, they were asked to complete a feedback form at the end of the day. A total of 171 forms were completed from 26 support days during the period February 2014–July 2018.Participants stated that they found the support day helpful, relaxing, informative, supportive and enjoyable. All except two felt it met their needs and expectations and the majority found the length of the day just right. The personal introduction and discussion session were most frequently cited as the most useful part of the day, with the majority of participants (N = 144, 96.7%) rating it as very or moderately helpful.These findings show that the BCH support day, developed to address the needs of people with secondary breast cancer, is a model of survivorship care that can have a positive impact on their lives.
Highlights
IntroductionSecondary breast cancer ( known as metastatic or stage four) occurs when breast cancer cells spread to other parts of the body such as the bone, brain, liver or lungs
Secondary breast cancer occurs when breast cancer cells spread to other parts of the body such as the bone, brain, liver or lungs
The personal introduction and discussion session were most frequently cited as the most useful part of the day, with the majority of participants (N = 144, 96.7%) rating it as very or moderately helpful. These findings show that the Breast Cancer Haven (BCH) support day, developed to address the needs of people with secondary breast cancer, is a model of survivorship care that can have a positive impact on their lives
Summary
Secondary breast cancer ( known as metastatic or stage four) occurs when breast cancer cells spread to other parts of the body such as the bone, brain, liver or lungs. The BCH support programme, based on a model of integrated cancer care, has been developed over 20 years by the charity’s experienced clinical team It incorporates different forms of emotional and psycho-educational support as well as the use of complementary therapies to support physical symptoms. In addition to their personalised support programme, a monthly support day tailored to address their specific needs has been established and evaluated at the BCH centre in Leeds, Yorkshire, since 2014. To evaluate how helpful this support day was to its participants, they were asked to complete a feedback form at the end of the day, the findings of which are reported here
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