Abstract

This study evaluated the quality of epilepsy care in an ambulatory population of a major medical center and determined if there were any racial/ethnic variations. The well-established ‘Quality Indicators in Epilepsy Treatment (QUIET)’ study dataset was used. Medical record, phone interview, and mail-out survey data of 311 patients with epilepsy were linked and analyzed. Evaluation of care from provider and patient perspectives was performed. Overall, the patients with epilepsy received 40.9% of QI recommended care. The black patients were more likely to receive 50% or more QI recommended care compared with non-Hispanic whites (odds ratio [OR]=2.16, 95% confidence interval [CI] 1.09–4.27). Black patients scored significantly worse than non-Hispanic whites for two patient-reported measures — perceived racial/ethnic disparities (OR=3.14, 95% CI 1.15–8.53) and difficulties getting follow-up appointments (OR=3.37, 95% CI 1.55–7.32). The results indicate the need to evaluate both provider- and patient-centered measures in quality-of-care studies in disparities research.

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