Abstract

The development of healthcare services for dementia is key to improving access to care and post-diagnostic support for people living with dementia. Memory Units have emerged as a new healthcare service composed of multidisciplinary teams with the goal of improving diagnosis and/or management of dementia patients. The main objective of this study was to describe and evaluate the Reach and Effectiveness of a Memory Unit in a public hospital in Chile, using the RE-AIM model, a multi-component model that allows for the evaluation of the implementation of ongoing healthcare programs. Regarding “R” (Reach): from March 2018 up to June 2019, a total of 510 patients were referred and assessed. Most patients came from primary care (51.9%) and from outpatient services at the Hospital Salvador (39.2%), particularly from the Neurology (63.3%) and Psychiatry (16.0%) departments. We estimated that our Memory Unit assessed 5.39% of all of the dementia patients living in the area of referral. With respect to “E” (Effectiveness): 419 patients are still being followed up at the Memory Unit. Ninety-one patients (18%) were discharged. Of these, 55 (66%) were referred to primary healthcare, 28 (31%) to other outpatient services, 9 (10%) to a specialized mental healthcare center, and 9 (10%) to a daycare center. Due to the short period of time that the Memory Unit has been operating, no other RE-AIM dimensions could be evaluated at this juncture. To our knowledge, this is the first implementation study of a Memory Unit in Latin America, and the first using the RE-AIM model. Although cultural differences worldwide might play a role in the lack of international guidelines, the publication of the experience of the first year of this unit in Chile could inform new countries about this process. Ongoing challenges include continuing to collect data to complement the RE-AIM evaluation and developing a protocol that can be adopted elsewhere in Chile and Latin America. Further studies are needed to assess the benefits of a Memory Unit in comparison to regular care and to develop a model that assures continuity and coordination of care for people with dementia.

Highlights

  • Dementia is a syndrome composed of impairment in one or more cognitive domains that affects everyday day functioning and independent living

  • For Reach and Effectiveness, we provide a general evaluation regarding the performance of CMYN in each of these dimensions based on information regularly collected by healthcare professionals and interviews with key informants

  • RE-AIM is recommended to evaluate the implementation of health services that are still in a developmental stage and provides several other advantages to fulfill the goal of our study: it represents an easy and approachable methodology and enables us to analyze parts of the model (e.g., Reach and Effectiveness) even if the other parts are not available

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Summary

Introduction

Dementia is a syndrome composed of impairment in one or more cognitive domains (e.g., memory, language, orientation, and decision-making) that affects everyday day functioning and independent living. If we consider the impact that dementia has on relatives and friends, one can estimate that over 800,000 people are dealing with the consequences of this condition in Chile [2]. In those 60 years old and older, the prevalence was 7.0% (women 7.7%; men 5.9%) and was higher in rural than in urban samples (10.3 vs 6.3%) [3]. There is no information on the possible underdiagnosis of dementia in Chile or in Latin America. A recent PRISMA systematic review on diagnosis of dementia only found one Latin America, with no information on underdiagnosis [4]

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