Abstract
The Human Genome Project was a large coordinated effort designed to produce a highly detailed and dynamic picture of our genetic material. It was clear from the beginning of the Project that the results would raise a host of ethical, legal, and social issues. To address these questions, the National Human Genome Research Institute created the Ethical, Legal, and Social Implications (ELSI) Program, with the charge to fund basic and applied research on the ethical, legal, and social implications of genetic and genomic research for individuals, families, and communities. Nearly 25 years later, ‘ELSI’ has become a recognized term for research that deals with the social, legal, and ethical issues arising from advances in biomedical science.
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