Abstract
Patient data have conventionally been thought to be well protected by the privacy laws outlined in the United States. The increasing interest of for-profit companies in acquiring the databases of large health care systems poses new challenges to the protection of patients’ privacy. It also raises ethical concerns of sharing patient data with entities that may exploit it for commercial interests and even target vulnerable populations. Recognizing that every breach in the confidentiality of large databases exposes millions of patients to the potential of being exploited is important in framing new rules for governing the sharing of patient data. Similarly, the ethical aspects of data voluntarily and altruistically provided by patients for research, which may be exploited for commercial interests due to patient data sharing between health care entities and third-party companies, need to be addressed. The rise of technologies such as artificial intelligence and the availability of personal data gleaned by data vendor companies place American patients at risk of being exploited both intentionally and inadvertently because of the sharing of their data by their health care provider institutions and third-party entities.
Highlights
The history of patient records dates back 4000 years, when patient case records were stored in written form [1]
Interact J Med Res 2021 | vol 10 | iss. 2 | e22269 | p. 3 responsibility of the customer, medical institution, or health care organization that sells data to Amazon to ensure that it complies with patient privacy regulations [14]
Extra provisions should protect sensitive information from solicited distribution, such as between covered entities outlined in the Privacy Rule, and unsolicited distribution, such as data breaches and unauthorized sharing, of patient information that could result in altered insurance costs or any other form of inequality or unjust treatment
Summary
The history of patient records dates back 4000 years, when patient case records were stored in written form [1]. AHRQ, in addition to REDCap and REACHnet, presents a compelling argument on the benefit of patient data utility for health care improvement as well as examples of appropriate HIPPA-compliant use of patient information.
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