Abstract

Qualitative research is integral to the pandemic response. Qualitative methods are ideally suited to generating evidence to inform tailored, culturally appropriate approaches to COVID-19, and to meaningfully engaging diverse individuals and communities in response to the pandemic. In this paper, we discuss core ethical and methodological considerations in the design and implementation of qualitative research in the COVID-19 era, and in pivoting to virtual methods—online interviews and focus groups; internet-based archival research and netnography, including social media; participatory video methods, including photo elicitation and digital storytelling; collaborative autoethnography; and community-based participatory research. We identify, describe, and critically evaluate measures to address core ethical challenges around informed consent, privacy and confidentiality, compensation, online access to research participation, and access to resources during a pandemic. Online methods need not be considered unilaterally riskier than in-person data collection; however, they are clearly not the same as in-person engagement and require thoughtful, reflexive, and deliberative approaches in order to identify and mitigate potential and dynamically evolving risks. Ensuring the ethical conduct of research with marginalized and vulnerable populations is foundational to building evidence and developing culturally competent and structurally informed approaches to promote equity, health, and well-being during and after the pandemic. Our analysis offers methodological, ethical, and practical guidance in the COVID-19 pandemic and considerations for research conducted amid future pandemics and emergency situations.

Highlights

  • Qualitative modes of inquiry are essential to designing and implementing effective and inclusive responses to the COVID-19 pandemic and future emergency situations

  • As public health recommended (PHR) behavioral measures remain essential to controlling the pandemic amid emerging virus variants of concern (WHO, 2021), investigations that aim to explore and understand knowledge, attitudes, beliefs, and structural factors that impede support these measures are crucial

  • In response to broad restrictions on social and behavioral health research during lockdowns, this paper considers the imperative of qualitative research in a pandemic and offers practical guidance for ethically pivoting to and implementing online methods in response to changing realities

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Summary

Introduction

Qualitative modes of inquiry are essential to designing and implementing effective and inclusive responses to the COVID-19 pandemic and future emergency situations. Online research methods, COVID-19, qualitative research, data collection, social media, informed consent, marginalized populations Qualitative research, both research in process and new projects, requires careful ethical evaluation of procedures, risks, and benefits in the pandemic (e.g., site selection, sampling, recruitment, data collection, interventions, and knowledge translation).

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