Abstract
This article investigates some elements of representation in literary work based on memoirs of people with Hansen's disease (formerly known as leprosy) who lived the confinement forced upon people with this disease in Brazil until the mid-1980s. In addition to the stigma associated with leprosy, this policy traumatized patients, who faced social exclusion and loss of relationships; these experiences yielded autobiographies, biographies, and even romances inspired by their memories of life in isolation. Our objective is to understand, through the study of some of these records, how these people saw themselves and how they viewed the disease and their places of confinement.
Highlights
This article investigates some elements of representation in literary work based on memoirs of people with Hansen’s disease who lived the confinement forced upon people with this disease in Brazil until the mid-1980s
Nelas também são narradas as relações com outros que viveram a mesma situação, mas, sobretudo, busca-se dar um novo sentido a essas experiências (Gomes, 2004, p.11), seja como exemplo de superação das dificuldades vividas ou para “ofertar ao público o retrato de uma doença: a lepra” (Katia, 1965, p.2)
Perde o lázaro a liberdade: uma história das políticas públicas de combate à lepra no Brasil (1941-1962)
Summary
Escritas de si e de uma doença: um estudo sobre produções de caráter biográfico e autobiográfico de ex-portadores do mal de Hansen. Este artigo investiga alguns dos elementos de representação em produções literárias baseadas em memórias de ex-portadores de lepra (atualmente denominada hanseníase) que viveram o regime de isolamento, em vigor no país até meados da década de 1980. Essas experiências resultaram na escrita de autobiografias, biografias ou, ainda, romances inspirados nas memórias da vida em isolamento. Busca-se, portanto, compreender, a partir do estudo de alguns desses registros, como essas pessoas se viam e como viam a doença e os locais de isolamento.
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