Esclerosis lateral amiotrófica: a propósito de un caso

Abstract

Introduction: Amyotrophic lateral sclarosis is a degenerative disease of the motor neurons characterized by broad deterioration of the motor system, which prevents basic activities of daily living (BADL). General objective: to describe the difficulties found in approaching patients with ALS in terms of symptom control and decision-making. Case report: a young patient with ALS at the final stage of his life. Approaching symptom control and difficulties in decision-making. Conclusions: ALS causes deep emotional suffering in patients, their families, and healthcare teams. Uses of the subcutaneous route for symptom control. Because the desired effects are achieved, increasing benzodiazepine and neuroleptic doses may suggest there is no therapeutic ceiling. In case of refractoriness propofol may be an alternative.