Abstract

Recruitment of a sufficiently large cohort of patients is a prerequisite for many research projects in the field of rare disorders. We are establishing the Acquisition of Rare Neurological Disorders in Childhood (Erhebung Seltener Neurologischer Erkrankungen im Kindesalter—ESNEK) which is modeled on the German pediatric surveillance system (Erhebungseinheit seltener pädiatrischer Erkrankungen in Germany, ESPED).

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