Abstract
Epidermolysis bullosa (EB) is a group of rare genetically determined disorders affecting the structure of the skin and sometimes the internal mucosa. Severely affected individuals may die in early infancy, or may live a life where they are never free of wounds. The charity DEBRA (Dystrophic Epidermolysis Bullosa Research Association) funds a healthcare team including eight specialist nurses who offer a service to all those affected by EB throughout the UK. Recent National Specialist Commissioning Advisory Group (NSCAG) funding has led to the provision of additional specialist services.
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Schedule a callMore From: British journal of nursing (Mark Allen Publishing)
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