Abstract
Trunk control is essential for many daily activities such as sitting and walking. Impaired trunk control causes difficulties in performing daily activities especially at later stage of Duchenne muscular dystrophy (DMD). This study was planned to demonstrate the reliability and validity of trunk control measurement scale (TCMS) in DMD. Twenty boys with DMD were included in the study. Two physiotherapists evaluated all boys with TCMS for inter-rater reliability. TCMS was applied with two weeks interval by the same physiotherapist to examine inter-rater reliability. Criterion-related validity was determined with the correlation between TCMS and motor function measure (MFM), and functional independence measure (FIM). The mean age of children was 9.4±3.3 years. The ICC value of inter-rater reliability was 0.953-0.994 and intra-rater reliability was 0.978-0.997. A positive, strong correlation was found between TCMS and MFM (p<0.01, r=0.88) and TCMS and FIM (p<0.01, r=0.85). TCMS is found to be a reliable and valid assessment to measure trunk control in boys with DMD. The scale can help to clinicians and researchers to observe and determine the trunk control in clinical trials as well as clinical practice.
Highlights
EP.95 Patient perception of outcome measures for non-ambulant Duchenne muscular dystrophy patients K
Two physiotherapists evaluated all boys with trunk control measurement scale (TCMS) for inter-rater reliability
Criterion-related validity was determined with the correlation between TCMS and motor function measure (MFM), and functional independence measure (FIM)
Summary
EP.95 Patient perception of outcome measures for non-ambulant Duchenne muscular dystrophy patients K. 20 non-ambulant DMD patients (range 8.6-24.1 yrs) were included. Active-Seated scored highest on fun (median 8), followed by muscle force tests and PUL (median 7). Active-Seated was the most tiresome (median 6), followed by muscle force tests (median 5), and Functional Workspace (median 4).
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