Abstract

Detecting and analyzing patient insights from social media enables healthcare givers to better understand what patients want and also to identify their pain points. Healthcare institutions cannot neglect the need to monitor and analyze popular social media outlets such as Twitter and Facebook. To have a study success, a healthcare giver needs to be able to engage with their patients and adapt to their preferences effectively. However, data-driven decision-making is no longer enough, as the best-in-class organizations struggle to realize tangible benefits from their data-driven analytics investments. Relying on simplistic textual analytics that use big data technologies to learn consumer/patient insights is no longer sufficient as most of these analytics utilize sort of bag-of-words counting algorithms. The majority of projects utilizing big data analytics have failed due to the obsession with metrics at the expense of capturing the customer’s perspective data, as well as the failure in turning consumer insights into actions. Most of the consumer insights can be captured with qualitative research methods that work with small, even statistically insignificant, sample sizes. Employing qualitative analytics provide some kind of actionable intelligence which acquires understanding to broad questions about the consumer needs in tandem with analytical power. Generating insight, on one hand, requires sound techniques to measure consumers’ engagement more precisely and offers depth analytics to the consumer data story. On the other hand, turning relevant insights into actions requires incorporating actionable intelligence across the business by verify hypotheses based on qualitative findings by using web analytics to see if these axioms apply to a large number of customers. The first component of our visionary approach is dedicated to identifying the relationships between constituents of the healthcare pain points as echoed by the social media conversation in terms of sociographic network where the elements composing these conversations are described as nodes and their interactions as links. In this part, conversation groups of nodes that are heavily connected will be identified representing what we call conversation communities. By identifying these conversation communities several consumer hidden insights can be inferred from using techniques such as visualizing conversation graphs relevant to given pain point, conversation learning from question answering, conversations summaries, conversation timelines, conversation anomalies and other conversation pattern learning techniques. These techniques will identify and learn the patient insights without forgetting from the context of conversation communities, are tagged as “thick data analytics”. Additionally machine learning methods can be used as assistive techniques to learn from the identified thick data and build models around identified thick data. With the use of transfer learning we also can fine tune these models with the arrival of new conversations. The author is currently experimenting with these seven insights driven learning methods described in this paper with massive geo-located Twitter data to infer the quality of care related to the current COVID-19 outbreak.

Highlights

  • The traditional solution to understanding patient experience and insights from social media is the use of web scrapersThe associate editor coordinating the review of this manuscript and approving it for publication was Dalin Zhang.to collect patient’s feedback from notable blogs and eliciting patient complaints from governmental systems like the FDA FAERS [1]

  • This article focuses on social media, in particular Twitter, as a source for patient insights due to its omnipresence, dynamism, engaging and geolocation focus

  • This paper described a holistic vision to identify useful patient insights over Twitter relevant to the patient pain points using qualitative insights driven methods (IDLs)

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Summary

Introduction

The traditional solution to understanding patient experience and insights from social media is the use of web scrapersThe associate editor coordinating the review of this manuscript and approving it for publication was Dalin Zhang.to collect patient’s feedback from notable blogs (e.g. from PatientsLikeMe.org, Drugs.com) and eliciting patient complaints from governmental systems like the FDA FAERS [1]. Our proposed exploratory IDL methods described is based on the notion of Thick Data and it meant to be used by physicians and researchers for a specific or a narrow area of inquiry to explain everyday lives of patients and explores their pain points from social media like Twitter in order to understand patients set of preferences, attitudes, timelines, experiences, opinions, emotions, behavior, context, social dynamics and sensory information.

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