Abstract

This article aims to explore the relationship between patient empowerment and information and communication technologies (ICTs). Indeed, ICTs are considered important for increasing access to medical information and for patients’ other experiences, thereby nourishing the empowering rhetoric. The paper presents a research study conducted in Italy that focuses on the self-assessments made by online health communities (OHCs) users, subdivided in three categories, according to their level of online activity: Lurkers, occasionally active users and frequently active users. The concept of empowerment was operationalised in five issues: autonomy from doctors, involvement in medical decision-making, competence, self-management and acceptance. The results support the relationship between perceptions of empowerment and the higher level of activity played on OHCs, contributing instead to reject the idea of a generalised benefit. Moreover, the paper aims to enrich the theory of patient empowerment by adding a socio-material perspective. This helps broaden the understanding of the relationship between empowerment and ICTs by highlighting its underlying complex skein. Key words: Empowerment, self-management, information and communication technologies, online health communities, socio-material perspective, chronic disease.

Highlights

  • This article explores the relationship between empowerment, chronic diseases and information and communication technologies (ICTs) by presenting the main results of a research study conducted in Italy in 2017

  • By conceiving patient empowerment as that process and outcome of mastery over one‟s life and health management, we ought to consider that it might take „different forms for chronic and acute conditions‟; „different forms may require different measures‟ (Shultz and Nakamoto, 2013: 9). Stemming from this statement, and considering that the target of this paper are people living with chronic diseases and conditions, we propose an operationalisation of patient empowerment that in part differs from the past studies discussed above

  • This article analysed whether ICTs enhance patient empowerment

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Summary

Introduction

This article explores the relationship between empowerment, chronic diseases and information and communication technologies (ICTs) by presenting the main results of a research study conducted in Italy in 2017. 2015: 132), and an ideal to be pursued in contemporary healthcare (Andreassen and Trondsen, 2010; Akeel and Mundy, 2019), as well as for aims related to the economic sustainability of the system (De Luca et al, 2019). This rhetoric is spurred on by a seemingly endlessly upcoming revolution in healthcare driven by the newest digital technologies (Lupton, 2013). Due to the advancement from Web 1.0 to Web 2.0, ICTs directly supply all citizens with relevant channels, which

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