Engaging Latino Patients in Diabetes Research: What We Are Learning

Abstract

Abstract Through a collaborative partnership between Latino diabetes patients, community stakeholders, and researchers, we developed insights into patient-engaged research. Here, we share what we have learned about a patient-engaged research process in relation to the experience of our Patient Advisors and to the research itself. To develop this manuscript, we engaged in ex post facto critical analysis of our collaborative experience. We include our own musings with input and insights from our Patient Advisors. We learned how our Patient Advisors experience and participate in research, and we revealed dimensions of the research process. Our patient-engaged research with this population is supported by funding for stipends and food, acknowledging patient perspectives and experience, attention to communication issues, strong listening skills, relationship-building, and spending time creating an integrated group dynamic. Using this approach, patient ideas and concerns can be successfully incorporated into research design.