END OF LIFE CARE IN BRAIN TUMOUR PATIENTS: DEMOGRAPHICS AND PREFERENCES

Abstract

Abstract AIMS We used a regional NHS Electronic Palliative Care Coordination System (Coordinate My Care) to understand patient preferences and priorities for care at end-of-life. We present data on patient demographics and preferences and factors influencing the location of death in a primary brain tumour patient cohort. METHOD We identified all primary brain tumour patients from NW and SW London on the system. We examined patient demographics and compared the recorded preferred place of death (PPD) with the actual place and explored how patient demographics differ according to this. RESULTS Our dataset contains 1437 patients. 55% were male and 53% were 65 or older. 1222 (85%) were deceased. Of patients that had a recorded preference (N=987), 30 (3.0%) had hospital recorded as one of their two PPDs. Of those with a recorded place of death (N=864), 10.5% died in hospital. 24.8% had an unknown actual or PPD. Of those with a recorded preferred and actual place of death , 83.6% died in PPD. Patients who died at their preferred location had lower overall survival and were more likely to have stayed in a care home. A higher percentage of men compared to females died in a location other than their PPD. CONCLUSIONS Here we present preliminary analysis of patient provided data and their preferences for end-of-life care. We will triangulate these data end-of-life care data from Gliocova project, where we have data on over 50,000 brain tumour patients, to get a more in depth understanding of the patient care in the last months of life.