Abstract
BackgroundFamily caregivers (FCGs) play a key role in the plan of care provision for long-term cancer survivors, yet few studies have been conducted on the impact of long-term caregiving on FCGs and their employment patterns. This study aims to further our understanding of the effect that caregiving role has on FCGs by identifying what cancer-related characteristics influence reduction of employment hours among FCGs in the post-treatment phase in China.MethodsA total of 1155 cancer survivors participated in this study. Patients reported changes in the employment patterns of their FCGs. Descriptive analysis looked at demographic and cancer-related characteristics of cancer survivors and types of FCGs’ employment changes in both primary- and post-treatment phases. Chi-square test was used to statistically test the association between survivors’ characteristics and changes in FCGs’ hours of labor force work in post-treatment phase. Separate multivariable logistic regression models were used to examine the relationship between cancer-related characteristics of participants and employment reduction patterns among FCGs in post-treatment phase while controlling for demographic factors.ResultsIn the primary-treatment phase, 45.6% of all FCGs reduced their working hours and 17.4% stopped working altogether. In the post-treatment phase, 25.2% of FCGs worked fewer hours and 6.6% left the workforce completely. The results show that a higher probability of change in employment hours among FCGs is associated with the following patient characteristics: having comorbidities, receiving chemotherapy treatment, limited ability to perform physical tasks, limited ability to perform mental tasks, and diagnosis of stage II of cancer.ConclusionsCare for cancer patients in both primary- and post- treatment phases may have substantial impacts on hours of formal employment of Chinese FCGs. Interventions helping FCGs balance caregiving duties with labor force work are warranted.
Highlights
Caregivers (FCGs) play a key role in the plan of care provision for long-term cancer survivors, yet few studies have been conducted on the impact of long-term caregiving on Family caregivers (FCGs) and their employment patterns
This study aims to 1) examine the effect of long-term caregiving on the employment status of FCGs caring for cancer patients; and 2) identify which cancerrelated characteristics are associated with negative employment changes among FCGs in post-treatment phase
Study design and participants We used the Cancer Supplement of the Medical Expenditure Panel Survey (MEPS) as a template to design the survey for this study - “Your Experiences with Cancer in China” (Additional file 1 provided the related items from the Questionnaire of the survey)
Summary
Caregivers (FCGs) play a key role in the plan of care provision for long-term cancer survivors, yet few studies have been conducted on the impact of long-term caregiving on FCGs and their employment patterns. Data presented by GLOBOCAN 2018 indicated that there would be an estimated 18.1 million new cancer cases all over the world in 2018 with approximately 24% of them residing in China [1] This is largely due to population growth and increase in longevity, but another contributing factor is the change in disease patterns in China. FCGs work without external compensation and might need to spend months or even years of time and energy on care and support for patients. Such caregiving demands may bring potentially negative impacts on physical, emotional, social or economic wellbeing of the caregiver [7]
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