Emergent voices. Exploring the lived experience of seniors with intellectual disability

Abstract

ABSTRACTIn Norway, as in many European countries, there has been a major change in living conditions for people with intellectual disability over the last 30 years. State policy has changed, involving the reduction of institutional care with the aim of normalising people’s life situations and service provision. A challenge in the early years of reform was a lack of first-hand experiences. Researchers attempting to interview people with intellectual disabilities themselves about moving out of institutions concluded that this was methodologically problematic, as informants tended to answer what they thought was expected of them. While this may also reflect features of the research at that time, many of those with first-hand experiences of the reform have later confirmed that they had but a weak voice of their own. Today, their voices are stronger, and many of them provide important testimonies of the ‘true consequences’ of the reform. This article reveals some of these testimonies. Through in-depth interviews, six people with intellectual disabilities tell about their institutional lives and their present lives in the community. The strongest testimony to the reform is perhaps our informants’ ability to give words to, and reflect on, what was previously just a silent pain.