Embracing an “African Ethos” to facilitate African immigrants participation in medical genetics and genomics research

Abstract

BackgroundLimited published research exists on perceptions and potentials for black African immigrants' participation in medical genetics and genomics research. PurposeThis study explores the inclination and disinclination of African immigrants to be involved in genetics and genomics research. MethodsIn-depth qualitative interviews were employed in which a sample of black African immigrants 18 years and older (n = 34) were interviewed. DiscussionBarriers included contrary beliefs and customs about disease and the human body that differs from Western conceptions, and lack of genuine connection to the health care system. Facilitators included promotion of an “African ethos,” wherein Africans unite with one another in a communal extension of self and robust community involvement across the life span of genetic studies. ConclusionIt is important for researchers and genetic counselors to understand the sociocultural underpinnings of African immigrants about genetics and genomics research as an initial step to encouraging their participation.