Ellen and the little one: A critical phenomenology of potentiality in life with dementia

Abstract

In this article, we outline a critical phenomenology of potentiality as it emerges in life with dementia. Foregrounding the sources of everyday creativity that are part of life with dementia, we propose a critical counter-argument to that of dementia as a form of living death. Our ethnographic vantage point is an episode we encountered during fieldwork at a dementia unit in Denmark. Here, one of the residents of the unit, Ellen, is interrupted in her ways of inhabiting the world by an intimate encounter with a polymorphous creature she calls ‘the Little One’. We argue that this interruption is an ontological event that ushers in new meaningful possibilities for Ellen and the Little One—and for Ellen’s relatives, caregivers, and several other residents—to co-inhabit the world. In critical dialogue with recent theoretical developments in the anthropology of cognitive disability and the ontological turn, we develop a differential social ontology capable of tracing how such interruptions characterize everyday life at the unit—and how various ways of responding to the potentiality of interruptions form responsive communities of care that cross often profound differences between people and between humans and non-humans, such as Ellen and the Little One. We conclude by briefly sketching some implications of these arguments for the care ethics that underlie institutional practices of dementia care.