Abstract

IntroductionPatients with systemic lupus erythematosus (SLE) face barriers that limit their physical activity (PA) and can affect their physical and mental health. This study investigated the impact of a telematic educational intervention on PA and related factors, among adolescents and young people with SLE. MethodA pretest–posttest design was used in a group with 12 participants. Multiple aspects were evaluated, such as the frequency, intensity and duration of PA, intention to perform PA, quality of life and health beliefs. ResultsTwelve female adolescents between 13 and 20 years old (x̅=17.08) participated in the study. Twelve concurrent conditions were identified, including anxiety (19.44%), arthritis (13.89%), and hypertension (13.89%). There was a significant increase in quality of life assessed by the Peds-QL-RM from baseline to the fourth week of follow-up, with an increase in median of 45.39 (p=0.008). No significant changes were identified in the level of PA (PAQ-A and PAQ-C) or in the intention to perform PA. The most frequently reported physical activities after four weeks post-intervention were walking (42.36%), aerobics routine (19.21%) and exercise routine (16.75%). ConclusionThe multi-component educational intervention, with an informational and socio-behavioral approach, implemented in a community setting improved the quality of life in adolescents and young people with SLE. These findings support the importance of addressing the lack of PA in this population and underscore the need to develop specific intervention programs to improve the health and well-being of patients with SLE.

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