Effects of social support, stress, and level of Illness on caregiving of children with AIDS

Abstract

The purpose of this descriptive correlational study was to explore the relationship between social support, stressors, level of illness, and perceived caregiver burden in caregivers of children with HIV/AIDS. Instruments used were: (1) the Classification System for Human Immunodeficiency Virus (HIV) Infection in Children Under 13 Years of Age (1987), (2) the Daily Hassles Scale, (3) the Tilden Interpersonal Relationship Inventory (IPRI), (4) the Derogatis Stress Profile (DSP), and (5) the Caregiver Appraisal Scale. The sample was drawn from two medical centers in New Jersey. The 49 caregivers of children with perinatally acquired HIV were predominantly HIV-positive biological mothers of African American descent whose education ranged from 8th grade through college. One-half of the children were classified at the CDC P2 level. Descriptive statistics and stepwise multiple regression were used to analyze the data. The results of the DSP indicated subjects were slightly below the 70th percentile for anxiety, depression, hostility, and work stressors and that subjects' social support levels were in the upper end of the low support category. Stepwise regression indicated that depression and anxiety predicted 40% of the variance in caregiver burden (R2 = .399; F = 14,985; p = .000). Hostility and level of social support predicted 37% of the variance in caregiving impact (R2 = .37; F = 13.254; p = .000). Finally, social support predicted 17.5% of the variability in the caregivers' sense of caregiving competency (R2 = .175; F = 9.788; p = .003). The child's level of illness and HIV status of caregiver did not significantly predict variance in caregiving appraisal.