Effect of The Disability Integrating Health Post on The Quality of Life of Children with Cerebral Palsy: A Path Analysis Evidence from Sukoharjo, Central Java

Abstract

ABSTRACT Background: Children with cerebral palsy (CP) often represent a subgroup within children with special healthcare needs (CSHCN), children with medical complexity, and/or children with disabilities. Poor disability integrating health post access may leads to healthcare disparities and poor quality of life in children with CP. This study aimed to investigate effect of the disability integrating health post on the quality of life of children with cerebral palsy using a path analysis model. Subjects and Method: A cross-sectional study was carried out at 12 inclusion studio in Sukoharjo, Central Java, Indonesia, in October 2019. A sample of 100 children with cerebral palsy aged 4-18 years was selected by fixed disease sampling. The dependent variable was quality of life. The independent variables were gross motor function, parental cope, frequency of visit, and quality of service. Quality of life was measured by the cerebral palsy-quality of life (CP-QoL) questionnaire version parental proxy. Gross motor was measured by gross motor function classification system (GMFCS). The other variables were collected by questionnaire. The data were analyzed by path analysis run on Stata 13. Results: Good quality of life in children with cerebral palsy was directly decreased by high GMFCS score (b= -49.66; 95% CI= -69.58 to -29.75; p= 0.001). Good quality of life was directly increased by strong parental cope (b= 32.51; 95% CI= 9.45 to 55.58; p= 0.006) and good quality of service (b= 33.70; 95% CI= 10.98 to 56.42; p= 0.004). Quality of life was indirectly affected by frequency of visit through parental cope and quality of service. Conclusion: Good quality of life in children with cerebral palsy is directly decreased by high GMFCS score. Good quality of life is directly increased by strong parental cope and good quality of service. Quality of life is indirectly affected by frequency of visit through parental cope and quality of service. Keywords: quality of life, cerebral palsy, disability Correspondence: Retno Dwi Rohaniyati, Masters Program in Public Health, Universitas Sebelas Maret. Jl. Ir. Sutami 36A, Surakarta 57126, Central Java, Indonesia. Email: retnodr16@gmail.com. Mobile: 081546268418. DOI: https://doi.org/10.26911/the7thicph.03.98