Effect of Sickle Cell Crises Prevention Guide for Children on Parents Knowledge and Reported Practices

I Elsayed Hanaa ,A Abd Elrazek Fatma ,M Ragab Seham

doi:10.7176/jhmn/64-07

Abstract

Sickle cell anemia (SCA) is a global health concern associated with high childhood morbidity and mortality. The major associated complication is sickle cell crisis which cause frequent hospital admission. Therefore, the purpose of this study was to examine the effect of sickle cell crises prevention guide for children on parents’ knowledge and reported practices. The study was conducted at Hematology & oncology unit of Pediatric department at Menoufia University Hospital and Health insurance hospital for children. A quazi experimental design was used . A convenient sample of parents with sickle cell children in the above mentioned settings were selected (34 parents) from January to November 2018. One tool was used for data collection consists of 4-sections questionnaire to assess parents' knowledge and practice. The results of this study revealed that there were knowledge deficit between parents' about sickle cell disease, approximately two thirds of parents (64.7%) had improved on post intervention for reported practices of crisis prevention than pre intervention. Also, 79.4% of parents didn’t use social and cultural practices in prevention of sickle cell crises post intervention. Therefore, there was a highly statistical significance differences between pre and post intervention. Conclusion, implementing sickle cell prevention guide improve parents’ knowledge and reported practices for prevention of crises to promote children recovery. Recommendation , ensure that sickle cell booklets are made available to hospitals for parents in order to remind themselves on treatment and prevention of sickle cell crises. Keywords: Sickle cell crisis, knowledge, Practice DOI : 10.7176/JHMN/64-07 Publication date :July 31 st 2019

Highlights

I-Introduction Sickle cell anemia (SCA) is an autosomal recessive, gene hemoglobinopathy caused by abnormal red blood cells that arises from abnormal amino acid in the β-globin chain which causes red blood cells to lose their characteristic of biconcave disc shape (Bartolucci & Galacteros, 2012)
These findings revealed that the mean age and standard deviation of children were 6.5882±
This will allow parents to detect any complain earlier and seek appropriate treatment and apply preventive measures.This was in the same line with Amoran et al, (2017) who reported that the majority of young adults in their study were between ages 25-39 years

Summary

Introduction

Sickle cell anemia (SCA) is an autosomal recessive, gene hemoglobinopathy caused by abnormal red blood cells that arises from abnormal amino acid in the β-globin chain which causes red blood cells to lose their characteristic of biconcave disc shape (Bartolucci & Galacteros, 2012). It is a common life-threatening haematological disorder that affects millions of children worldwide which leads to a shortened life expectancy (Awd, 2018; Abbas, 2014). In many Arab countries, consanguinity may reach 25% - 30% of all marriages, a frequency which contributes to the increased rates of inherited genetic disorders (Tadmouri et al, 2009: Modell & Darlison, 2008).The increasing number of SCA will continue to have a major impact on healthcare services and financing (Piel et al, 2013)

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