EE502 Economic Burden of Patients with Hemophilia in China

Abstract

Hemophilia is a rare hereditary bleeding disorder caused by deficiency of a coagulation factor. Patients with hemophilia usually experience repeated bleeding which will partly lead to severe long-lasting clinical consequences. Life-long and standard treatment for hemophilia is needed, which result in substantial economic burden on patient families. In China, approximately 39,000 patients live with hemophilia, while less consideration was given to economic burden of hemophilia. This research aims to determine the economic burden of patients with hemophilia in China from societal perspective.