Educational technology on COVID-19 for families of children and adolescents with sickle cell disease.

Patrícia Peres De Oliveira,Letícia Camilo Santos,Edilene Aparecida Araújo Da Silveira,Elaine Cristina Rodrigues Gesteira,Nayara Cristine Protte De Paula,Walquíria Jesusmara Dos Santos,Rhillary Lorraine De Souza

doi:10.1590/0034-7167-2020-1045

Patrícia Peres De Oliveira, Letícia Camilo Santos + Show 5 more

Open Access

https://doi.org/10.1590/0034-7167-2020-1045

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Abstract

to construct and validate educational technology on COVID-19 and essential care for families of children/adolescents with sickle cell disease. this is a methodological study, in three stages: 1) elaborated educational technology, using the Doak, Doak and Root theoretical-methodological model; 2) content and appearance validation by the content validity coefficient. Delphi technique was applied in two rounds (Delphi I [12 judges]/Delphi II [11 judges]); 3) conducting a pilot test with six families. "Sickle cell disease and COVID-19: essential care" included: consequences of COVID-19 in sickle cell disease, guidelines for reducing the risks of contracting the virus and having complications, signs and symptoms of COVID-19, guidelines in case of child/adolescent with suspicion or symptoms of COVID-19. Global content validity coefficient (Delphi II): 0.98. educational technology presented content and appearance validity for families of children/adolescents with sickle cell disease, related to COVID-19.

Highlights

Sickle cell disease (SCD) is one of the most common hemoglobinopathies in the world
Accurate data regarding the number of individuals with SCD in the world are scarce, it is assumed that approximately 300,000 children are born with the disease each year
The educational technologies (ET) construction and validation on COVID-19 and the essential care for families of children/adolescents with SCD was developed with methodological rigor, to enable scientific knowledge to be accessible to nursing practitioners who work with these people

Summary

Introduction

Sickle cell disease (SCD) is one of the most common hemoglobinopathies in the world. Accurate data regarding the number of individuals with SCD in the world are scarce, it is assumed that approximately 300,000 children are born with the disease each year. Brazil has between 25,000 and 30,000 people with SCD and about 7 million with sickle cell trait. 3,500 live children/year with SCD are born, the prevalence varies widely across the country. The State of Bahia has the highest incidence of SCD (1:650), followed by the State of Rio de Janeiro (1:1,300); the third place is represented by four states (Pernambuco, Maranhão, Minas Gerais, and Goiás), with an incidence of 1: 1,400 live births[4]

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