Educational needs of persons with epilepsy: A qualitative study

Abstract

Background: Epilepsy is a devastating global health concern and can develop at any time in one's life. Inadequate knowledge and awareness about the disease and its causation, discrimination, social stigma are the most prevalent factors which often dissuade persons with epilepsy from seeking treatment. Methods: The study used descriptive qualitative research design and semi-structured interview to explore the educational needs of persons with epilepsy. Non-probability purposive sampling technique was used for selection of study sample based on study eligibility criteria. Data saturation was achieved after interviewing 8 samples. Thematic analysis was performed for analysis of the data. Statements were coded and different codes were collated into categories and subsequently into themes. Rigor and quality of the data was ensured using measures of credibility, transferability, dependability and conformability. Results: Three major themes namely exiguous knowledge, Deviant epilepsy management and Pragmatic challenges emerged from the analysis. The study finding revealed poor knowledge and awareness and inadequate skill in epilepsy self-management amidst many challenges among majority of the study participants. Conclusion: Therefore, there is a need to educate people with epilepsy about the disease and its self-management to manage their epilepsy well and enhance their quality of life.