Don't take my hope away: Understanding the patient's hope in neurological rehabilitation

Abstract

International Journal of Therapy and RehabilitationVol. 21, No. 6 EditorialDon't take my hope away: Understanding the patient's hope in neurological rehabilitationAndy Soundy, John Sayers, Brendon Stubbs, Carolyn RoskellAndy SoundySearch for more papers by this author, John SayersSearch for more papers by this author, Brendon StubbsSearch for more papers by this author, Carolyn RoskellSearch for more papers by this authorAndy Soundy; John Sayers; Brendon Stubbs; Carolyn RoskellPublished Online:2 Jun 2014https://doi.org/10.12968/ijtr.2014.21.6.257AboutSectionsView articleView Full TextPDF/EPUB ToolsAdd to favoritesDownload CitationsTrack CitationsPermissions ShareShare onFacebookTwitterLinked InEmail View article References Barnard D (1995) Chronic illness and the dynamics of hoping. In: Toombs SKBarnard DCarson RA (eds) Chronic illness from experience to policy. Indiana University Press, Indiana, US Google ScholarCoster K, Baird T, Julien C, Jones F (2012) Who controls the goals? Service users guiding the development of long term goal setting with rehab support workers in a community stroke team. UK Stroke Forum 2012 Conference, Yorkshire. Stroke Association, London Google ScholarCott CA (2004) Client centred rehabilitation: client perspectives. Disabil Rehabil 26(24): 1411–22 Crossref, Google ScholarParry RH (2004) Communication during goal-setting in physiotherapy treatment sessions. Clin Rehabil 18(6): 668–82 Crossref, Google ScholarRosewilliam S, Rosekll CA, Pandyan ADA (2011) systematic review and synthesis of the quantitative and qualitative evidence behind patient-centred goal setting in stroke rehabilitation. Clin Rehabil 25(6): 501–14 Crossref, Google ScholarRoyal College of Physicians (2012) National clinical guideline for stroke. 4th ed. Royal College of Physicians, London Google ScholarSmith B, Sparkes A (2005) Men, sport, spinal cord injury, and narratives of hope. Soc Sci Med 61(5): 1095–105 Crossref, Google ScholarSnyder CR, Rand KL, King EA, Feldman DB, Woodward JT (2002) ‘False’ hope. J Clin Psychol 58(9): 1003–22 Crossref, Google ScholarSoundy A, Benson J, Dawes H, Smith B, Collett J, Meaney A (2012) Understanding hope in patients with Multiple Sclerosis. Physiotherapy 98(4): 344–50 Crossref, Google ScholarSoundy A, Smith B, Butler M, Minns Lowe C, Helen D et al. (2010) A qualitative study in neurological physiotherapy and hope: beyond physical improvement. Physiother Theory Pract 26(2): 79–88 Crossref, Google ScholarSoundy A, Smith B, Dawes H, Pall H, Gimbrere K, Ramsay J (2011) Patient's expression of hope and illness narratives in three neurological conditions: a meta-ethnography. Health Psychol Rev 7(2): 1–25 Google ScholarWiles R, Ashburn A, Payne S, Murphy C (2004) Discharge from physiotherapy following stroke: the management of disappointment. Soc Sci Med 59(6): 1263–73 Crossref, Google ScholarWiles R, Cott C, Gibson BE (2008) Hope, expectations and recovery from illness: a narrative synthesis of qualitative research. J Adv Nurs 64(6): 564–73 Crossref, Google Scholar FiguresReferencesRelatedDetailsCited byDeveloping tailored theoretically informed goal-setting interventions for rehabilitation services: a co-design approach22 June 2022 | BMC Health Services Research, Vol. 22, No. 1An exploration of goal-setting practices in Queensland rehabilitation services7 May 2021 | Disability and Rehabilitation, Vol. 44, No. 16Hope that provides strength in illness–patients’ perspectives: Nursing students’ narratives after conversation with patients17 January 2022 | Scandinavian Journal of Caring Sciences, Vol. 20Support for living well with long‐term conditions: How people manage28 November 2020 | Journal of Clinical Nursing, Vol. 30, No. 3-4The role of hope for health professionals in rehabilitation: A qualitative study on unfavorable prognosis communication29 October 2019 | PLOS ONE, Vol. 14, No. 10Exploring narratives of physical activity and disability over time: A novel integrated qualitative methods approachPsychology of Sport and Exercise, Vol. 37Speech and language therapists’ perspectives of therapeutic alliance construction and maintenance in aphasia rehabilitation post-stroke18 January 2018 | International Journal of Language & Communication Disorders, Vol. 53, No. 3Developing and Applying the Theory of Psychological Adaptation Needs in Patients With Multiple Sclerosis∗The Hope and Adaptation Scale (HAS): Establishing Face and Content ValidityOpen Journal of Therapy and Rehabilitation, Vol. 04, No. 02The Psychological Processes of Adaptation and Hope in Patients with Multiple Sclerosis: A Thematic SynthesisOpen Journal of Therapy and Rehabilitation, Vol. 04, No. 01Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis12 May 2015 | Frontiers in Psychology, Vol. 6 2 June 2014Volume 21Issue 6ISSN (online): 1759-779X Metrics History Published online 2 June 2014 Published in print 2 June 2014 Information© MA Healthcare LimitedAcknowledgement:Quotes used in this manuscript appear from funded work from the Multiple Sclerosis Society, UK. Motivation and encouragement for this work was also given by the Multiple Sclerosis Society, Italy.PDF download