Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients

Abstract

In the current US organ transplantation system, there are no regulations defining how organ procurement organizationsmust manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system.