Abstract
Within value frameworks evaluating costs and benefits of new therapies, all disease and treatment attributes that society deems important should be considered. Therefore, societal views on these attributes should guide health research priorities. However, little data exist on how the general public values these different attributes. The objective was to identify the importance of attributes characterizing rare pediatric disorders from a societal perspective. Attributes were identified based on an ISPOR Task Force on US Value Assessment Frameworks and literature review.
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