Abstract
Contents: Introduction, Christoph Rehmann-Sutter and Hansjakob MA ller Part 1 Setting the Scene: The right to know and the right not to know - 10 years on, Ruth Chadwick Genetic counseling: placing the room in context, Barbara Katz Rothman Genetic counselling: clinical settings and constraints, Hansjakob MA ller. Part 2 Cases and Issues: Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease - a medical case, David Winkler and Philippe Lyrer Communication yes, but how - and what? Commentary to the case presented by David Winkler and Philippe Lyrer, Christoph Rehmann-Sutter The need for an ethics of kinship: decision stories and patients' context, Rouven Porz Testing for susceptibility genes: a cautionary tale, Margaret Lock 'If only I had (not) known that': about risk-individualization, chance-specification and the loss of certainty of not-knowing, Tjeerd Tymstra The symbolic fallout of gene talk: replacing the person with manageable constructs, Silja Samerski Predictive genetic testing of adolescents at risk of inherited arrhythmic death, Jane Kaye, Michael Parker and Edward Blair. Part 3 Responsibilities: How legal frameworks construct patterns of liability in genetic counseling: an international perspective, Daniel Wied, Susanne Listl and Maximilian Seibl Responsibility towards relatives, Michael Steel Careful communication of 'bad news': the cancer experience, Wolf Langewitz The responsibility of the truth-teller, Thomas Cerny Practising informed choice. Decision making and prenatal risk assessment - the Danish experience, Nete Schwennesen, Lene Koch and Mette Nordahl Svendsen Receiving and interpreting information: a joint enterprise, Jackie Leach Scully Without disclosure, no informed choice, Peter Miny Allowing agency: an ethical model for communicating personal genetic information, Christoph Rehmann-Sutter Conclusions, Christoph Rehmann-Sutter and Hansjakob MA ller Index.
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