Disability Expertise

Abstract

This paper stakes out a space for a critical global disability anthropology that considers disability not as a medicalized classification of impairment but as a relational category. Disability expertise, I argue, is the particular knowledge that disabled people develop and enact about unorthodox configurations of agency, cultural norms, and relationships between selves, bodies, and the designed world. Disability expertise is a descriptive domain, that is, a container into which ethnographers might enumerate observations about how disabled people enact personhood and moral agency in diverse cultural settings. To illustrate what I mean by disability expertise, I draw examples from one interlocutor’s experiences, described in interviews conducted during broader ethnographic research in Russia. I elaborate one particular domain of disability expertise: managing perceptions of disability, especially the tendency of nondisabled people to view disability through the tropes of suffering and pity. I call for anthropologists to claim disability anthropology as a space for critical, interdisciplinary knowledge production.