Dignity: The voice of older people

Abstract

This paper reports the findings of 89 focus groups and 18 individual interviews (involving 391 older people in 6 European countries) that were held to explore how older people view human dignity in their lives. Participants were all aged over 60 years and 25% were aged 80+ years. They were from a range of educational, social and economic backgrounds. 72% were women and 17% were living in residential or nursing homes.There was substantial agreement about the meaning and experience of dignity in older people's everyday lives. It was seen as a highly relevant and important concept, enhancing self‐esteem, self‐worth and well‐being. Three major themes were identified: respect and recognition; participation and involvement; and dignity in care.The theoretical model of human dignity developed in the project was reflected in many of the findings from the empirical data. Of particular importance and relevance was the notion of ‘dignity of personal identity’, not least because it is perhaps most vulnerable to the actions of others. Menschenwurde (expressed as the innate dignity of human beings) was also important.For dignity of older people to be enhanced, communication issues, privacy, personal identity and feelings of vulnerability need to be addressed. Education of all professionals should pay attention to practices that enhance or detract from the experience of dignity. Policies and standards need to go beyond the merely mechanistic and easily quantifiable, to identify meaningful qualitative indicators of dignity in care.