Abstract
BackgroundMost children with congenital heart disease (CHD) require surgical repair, and postoperative rehabilitation is an essential step to restore the quality of life. The present study constructs and confirms the International Classification of Functioning, Disability, and Health for Children and Youth core set for children with congenital heart disease 1 year after surgery (ICF-CY-CHDS).MethodsFrom February 2021 to August 2021, 340 children aged 3–6 years after CHD surgery were evaluated using the ICF-CY-CHDS and analyzed using the Rasch model.ResultsThe final ICF-CY-CHDS contained 22 categories; it exhibited a nonsignificant χ2 test result for the item-trait interaction (χ2 = 6736.37, p = 0.8660, Bonferroni-adjusted p = 0.0023). The average severity of children was less than the average difficulty of categories (−2.26 logit <0 logit). The weighted k of all the categories was 0.964 (p < 0.001), and the item separation index was 0.96. The area under the ROC curve of children with a diagnosis result of heart failure was 0.866 (95% CI: 0.801 ~0.931) with good sensitivity (0.875) and specificity (0.759).ConclusionThe ICF-CY-CHDS presents a preliminary practical direction during early cardiac rehabilitation after pediatric CHD surgery, and thus provides a basis and scope for clinical evaluation and intervention program formulation.
Highlights
The prevalence of congenital heart disease (CHD) was reported to be one per 1,000 live births worldwide between 1990 and 2017 [1]
The evaluation tool of cardiac rehabilitation after CHD surgery was constructed based on qualitative research, a literature review, and expert consultation
It was found that 24 children (7.1%) had heart failure within 1 year after CHD surgery
Summary
The prevalence of congenital heart disease (CHD) was reported to be one per 1,000 live births worldwide between 1990 and 2017 [1]. The surviving children with critical CHD still face many problems after surgery, especially the related adverse events caused by heart failure and a decline in their quality of life. Studies have reported that the probability of heart failure in the first year after. Most children with congenital heart disease (CHD) require surgical repair, and postoperative rehabilitation is an essential step to restore the quality of life. The present study constructs and confirms the International Classification of Functioning, Disability, and Health for Children and Youth core set for children with congenital heart disease 1 year after surgery (ICF-CY-CHDS)
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