Abstract
Rheumatoid arthritis affects 0.5% to 1% of the population globally and is one of the most common causes of disability. Patient education plays a key role in improving treatment outcomes. The purpose of this study was to discuss the process involved in designing an evidence-based disease education literature for rheumatoid arthritis patients of Pakistan in Urdu language with culturally relevant illustrations. A study was conducted to develop disease education literature using Delphi consensus, content validity, and patient feedback. A panel of experts comprised of university professors and health care experts, including health practitioners and pharmacists as well as a social scientist, was set up to assess the need. Eight patients were randomly selected and were asked to give their feedback. Their feedback was incorporated in the development process. The entire process was carried out in eight steps. A disease education literature for patients of rheumatoid arthritis was developed and edited in the form of a booklet. The booklet contained evidence-based information that must be provided to patients in both Urdu and English languages with culturally relevant illustrations. The availability of such literature is significant, as it enables the patients to seek knowledge at home at their convenience. This home-based knowledge support is as helpful as any other means of medical care. The developed literature is planned to be used in further studies which will evaluate its impact in improving knowledge of RA patients.
Highlights
Rheumatoid arthritis (RA) is considered as one of the most common causes of disability after osteoarthritis and gout
The need to develop an evidence-based disease education literature for Pakistani rheumatoid arthritis patients is based on the fact that there is an absolute dearth of educational material available to such patients in Urdu language
A panel of experts comprising university professors, health care experts, and a social scientist was set up to assess the need for developing evidence-based rheumatoid arthritis disease education literature for Pakistani patients
Summary
Rheumatoid arthritis (RA) is considered as one of the most common causes of disability after osteoarthritis and gout. It affects around 0.5% to 1% of the population globally [1]. The swelling of joints causes deformity and limits patient mobility, thereby complicating joint movements. This reduces patients’ productivity as well as quality of life. Figures for the prevalence of RA varied geographically, as literature reported. The grading was used to calculate the content validity ratio (CVR) for each literature domain as well as the content validity index (CVI). The content validity index for the literature was reported at 0.74 (SD 0.2).
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
