Abstract

BackgroundOver the past 20 years Functional Electrical Stimulation (FES) has grown in clinical use to support walking in people with lower limb weakness or paralysis due to upper motor neuron lesions. Despite growing consensus regarding its benefits, provision across the UK and internationally is variable. This study aimed to explore stakeholder views relating to the value of a clinical guideline focusing on service provision of FES to support walking, how people might use it and what should be included.MethodsA mixed methods exploration sought the views of key stakeholders. A pragmatic online survey (n = 223) focusing on the study aim was developed and distributed to the email distribution list of the UK Association for Chartered Physiotherapists Interested in Neurology (ACPIN). In parallel, a qualitative service evaluation and patient public involvement consultation was conducted. Two group, and seven individual interviews were conducted with: FES-users (n = 6), their family and carers (n = 3), physiotherapists (n = 4), service providers/developers (n = 2), researchers (n = 1) and distributors of FES (n = 1). Descriptive analysis of quantitative data and framework analysis of qualitative data were conducted.ResultsSupport for clinical guideline development was clear in the qualitative interviews and the survey results. Survey respondents most strongly endorsed possible uses of the clinical guideline as ensuring best practice and supporting people seeking access to a FES service. Data analysis and synthesis provided clear areas for inclusion in the clinical guidelines, including current research evidence and consensus relating to who is most likely to benefit and optimal service provision as well as pathways to access this. Specific areas for further investigation were summarised for inclusion in the first stage of a Delphi consensus study.ConclusionsKey stakeholders believe in the value of a clinical guideline that focuses on the different stages of service provision for FES to support walking. A Delphi consensus study is being planned based on the findings.

Highlights

  • Over the past 20 years Functional Electrical Stimulation (FES) has grown in clinical use to support walking in people with lower limb weakness or paralysis due to upper motor neuron lesions

  • This study aimed to explore the views of key stakeholders, with the following objectives: 1. To explore the value of and need for clinical guidelines that focus on service provision of FES to support walking, including how they might be used, and

  • This resonates with comments from all stakeholders in our qualitative analysis and survey findings that people felt clinical guidelines relating to service provision were important to help increase access to FES

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Summary

Introduction

Over the past 20 years Functional Electrical Stimulation (FES) has grown in clinical use to support walking in people with lower limb weakness or paralysis due to upper motor neuron lesions. Foot drop is commonly characterised by Bulley et al BMC Neurol (2021) 21:263 a difficulty lifting the toes (dorsiflex) when walking due to fatigue, muscle weakness, and/or spasticity [3]. This makes walking very tiring and difficult, with greater likelihood of trips, loss of balance, and falls. In the last twenty years Functional Electrical Stimulation (FES) has been developed and become more commonly used to support walking following an upper motor neuron lesion

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